The Clan

The Clan
" Every good gift and every perfect gift is from above, coming down from the Father of lights with whom there is no variation or shadow due to change." James 1:17

Saturday, December 29, 2012

Salem's Photo Diary- December 28th 2012

Hello World
Time: 12:54
Weight 7lb 13oz
Length 20 inches
 Meeting Daddy
 At first glance
 A closer inspection
 All Four
"So Big" Sister
Meeting Papa
A good look
Meeting Mema
Further inspection
THE Brother
Salem Elfed herself
Ok...... I did it, she objected
I let her have her way
Quizzical brow

Friday, December 28, 2012

Salem Ann

Salem Ann made her way into the world today at 1254.  She was 7lb. 14oz., 20 inches long. We are getting to know her.  She has a hardy appetite, and a lusty cry, both good things in a new born.  The kids loved her! When she started to cry Hosea plugged his ears and Aggie started whimpering in concern, and Shiloh looked at me with eyes asking if it was ok.  The older kids both enjoyed doting over her little fingers and ears and soft skin. I will post a picture soon.

Thursday, December 27, 2012

Labs

Aggies blood arrived safely in OH today, so thankful!

On another note, I'm scheduled for an induction in the morning.

Wednesday, December 26, 2012

Labs

We had are labs drawn today, probably are most pleasant lab experience yet, if a lab experience can be pleasant, this was high rating.  We had an appointment with someone who knew what they were doing, it was a blessing for sure.  Then we FedEx'd them overnight to their destinations per the instructions.  Now we are just praying that they don't get stuck somewhere in this storm sweeping across the country so we don't have to redo them. Geesh.

Tuesday, December 25, 2012

Belly Update

Just a little belly update:  the button in my middle is not quite it's self.

This is my first experience being "over due".  It has been a humbling one.

Saturday, December 22, 2012

While we Wait

While we've been waiting for little Miss Salem to make her grand appearance we've kept ourselves busy, maybe too busy? Probably so.
 Me Ma has been dominating the kitchen.
 Grandma and Grandpooh were also in town this week for Mike's youngest brothers graduation from the Navy EOD program.
 The kids have enjoyed receiving bundles of gifts. 
 Hosea is ready for more nerf wars.
 Grandpooh likes a good war.
 My parents (mema and papa) are staying with us.  Grandma and Grandpooh rented a condo at Destin.  We went to see them on one of the more fair days. It was in the high 60's, so we scoped out the beach and then swam in the heated pool.  The grandparents enjoy visiting with one another.  Hard to believe we had a beach trip in December.
 Shelling with Papa.
 Uncle Aaron's graduation. Only 1/3 of the students that start the program complete it, so it has been a great accomplishment for him this past year.  We are all very proud of him!

 All who came to watch the ceremony.  Mike's Family.
Mike and I bought the children a new playground for Christmas and My dad has been working away at getting it together this week.  Now that Mike is off for the holiday he can help also.  Hosea has been helping all week, he is the little supervisor under the roof. 

I've also had some adventures of being the parent of a "special needs child", we always joke that we have a "special needs child", as our dietitian was so kind to inform me of it on our last visit.  As if I was not aware.  I thought "lady if there is anyone closely acquinted with this fact, it's me".  So in making light of that........ I've made some "special" phone calls trying to find a lab that will draw blood work and overnight it to two different locations, as a follow up for our positive genetics results, per her Dr's instructions.  After a couple hours on the phone, I found a lab that will draw it, but we will have to ship it ourselves.  So then I made some more "special" phone calls learning how to over night blood.  Then I went on a "special" scavenger hunt to find materials for this "special" shipping project.  After all the information and material was gathered for this "special" project, I turned it over to my man, since the lab work must be drawn on the 26th of December for it to make it's scheduled arrival on the 27th to it's destinations, I thought giving my current circumstances it was best in his hands. Oh.... unrelated, but also on the "special" spectrum, I made another series of phone calls to get some "special" medicine for my "special needs childs" g-tube infection.  I'm really glad I didn't have anything planned this week, so I could take care of all our "special needs". 

Wednesday, December 19, 2012

Aggie's Genetics Labs


Aggies genetics Dr. called to inform us one of her labs had a positive result. Pyruvate dehaydrogenase. Which is a mutation in a gene that affects making and breaking down glucose.  It is on the X chromosome, and since girls have 2 X chromosome they often present with milder cases, if Aggie was male, she would probably be dead by now b/c males only have one X, so if all their X's are affected, they have more sever problems. The mutation seen on Aggies gene has not been seen in that exact location before.  They are sending us paper work so her, mike and i can all have further labs drawn to confirm an exact diagnosis, or deny something?  We will do that next week, as the one for Aggie had to be scheduled to be mailed. The treatment for this is a ketogenic diet, which we won't start until the next round of labs confirm it is what we need to do.

Here are wikapedia links if that is helpful.


Saturday, December 15, 2012

Random December Things

Shiloh reading in her car by the tree.
 Hosea "ready to go outside".  It's December and those are PJ's.
 Aggie standing up so big.
 Watching a meteor shower in the front yard at 1:45am. Hey if you're not sleeping, you just as well wake everyone else up.  The kids loved it.
 Piggy Tails


We like it when she laughs. 
Shiloh and Hosea Jam session.

Friday, December 14, 2012

Induction Cancelled

After talking with Mike, I think we are going to cancel the induction. I would have just deleted the previous post, but I feel like this is characteristic of how things go in late pregnancy, ups and downs.

Induction

I had an OB check up today.  I am scheduled to be induced on Tuesday.  It is not for medical reasons.
Here are the real reasons in no particular order.
1. My Dr. doesn't seem to want to be delivering me on Christmas.
2. I want to be home on Christmas.
3. Mike will get a few extra days off work, but the bulk of his "baby leave" will overlap with "christmas leave".
4. My older brother and family will be in MO from France, and I want my parents to feel the freedom and have the time to be both here for the birth, and back to home in time to see my brother's family before they return to France.  I'd feel pretty badly if they didn't get to see them. I'm bummed enough that I don't get to see them.
I do fully realize that this is not the ideal way to labor, and in all likely hood am prolonging my labor, but I feel like it is a more practical choice given our current circumstances.  I am however prayerful that she will come on her own before Tuesday. Stranger things have happened.

Wednesday, December 12, 2012

Fish

Don't worry, I gave the fish clean water today. I know that was plaguing many of you. :)

Disability Conference

Desiring God held a conference in November and it's focus was to minister to the disabled and their care givers. Though I'm relatively new in this world 2.5 years to be exact, my interest was pricked and honestly I really wanted to go.  But that just wasn't practical as Mike and I attended a different conference just days prior to this one. So I've settled for the next best thing and have been enjoying all the teaching online as I fold cloths and do dishes and cook dinner.  I've only had the pleasure of listening to 3 so far, but if you or someone you love could be blessed by such a resources, I commend it  to you/them.

2012 Works of God conference

Additionally a friend sent me this song for encouragement, and it is really great, you might enjoy it too.

Matt Redman- Never Once

Monday, December 10, 2012

News on the Job Front

We found out today that as of June 2013 Mike will no longer be an active duty marine.  We've been praying for a year now that the Lord would guide our steps in this area, and it is nice to finally have His answer.  I am excited to see what God has next for us!  No doubt it will be different, and we will face struggles along the way, but we are certain His grace will see us through.

The current plan on the drawing board is navy reserves and seminary.  There is still much knowledge to be gained about both.  So we shall see.  I feel like a high school girl trying to decided what to do with my future, it's fun to ponder, think and dream on such topics.

Sunday, December 9, 2012

OK..... I think I'm ready?

All Christmas gifts are purchased and wrapped
All Bedding is clean
Bathrooms clean
Baby/guest room in order
All unused children clothing is properly stored or given away
Fulfilled promise to kids to bake gingerbread men
Eyebrows are waxed
Toes painted red

All the important stuff...
Oh wait, I still need to change the fishes water.
I also plan to execute a week full of appointments, but if we miss those they can be rescheduled, I don't think we'll miss them. :)
By next weekend my only appointment or obligation is to have this baby girl, it almost feels like a relief to think of giving birth and sitting in a hospital room for a couple days compared to the schedule we've been keeping at home and away.

Friday, December 7, 2012

School for Aggie

I ordered Aggie a monogramed back pack and lunch bag today.  It was 30% off after all, and I was just instructed by a women who will be her teacher come January on my way out the door, "oh and she will need a back pack, not one of those little cute ones either, a real one that we can transport stuff back and forth in".  Me a deer in head lights; as I'm leaving this very sobering picture; thought "yes ma'am".  So I obeyed.

We toured 2 schools for Aggie this week.  We were told that our county had 2 programs available that would have a class to "fit her needs".  One was at a charter school about 10 min. from our home and the other a public elementary school about 20 min. from the house.  We visited the charter school on Wednesday and the other on Thursday.

The charter school was nice, but we had some concerns that it didn't really have all that it might need to accommodate a child like Aggie.  There were certainly no other children like her in attendance there presently.  Though they were willing to be accommodating; there were some very practical things that just didn't fit.  For example the hallways and room sizes were so small that if/when Aggie needs an assistive device for mobility she would have no way to maneuver.  The children played outside every morning, but there really wasn't a safe clean place for a crawling child to play outside.  All 3 therapy services were available, which is a huge priority for us. How would Aggie fit into this scene?

Thursday we visited the public school.  We are acquainted with the principal there; our church meets in this building every Sunday; so the building was also familiar.  We were much more satisfied with the things we saw and learned this day.  To name a few; we walked down a broad hallway with one wall lined with assistive devices for small children.  Turned right to enter a large class room.  There were 5 children present, one absent, and each child had an adult working with them.  In the classroom was the teacher, 2 aids, and therapists coming and going.  I could tell upon entering the room that when this building was designed, this room was created specially for the small, uniquely constructed people that would fill it.  The teacher reminded me of one of my relatives; an older middle aged women; stern, but caring.  She reminded me of a young grandmother who would give her grandkids treats, but with temperance. Loving them, yet keeping in mind the greater good. She was forward, which I most generally always appreciate.  She has many years of experience in her field, and has from what I could find out, a good reputation. The classroom had a variety of children with special needs.  Aggie wasn't specifically like any of them, but none of them were especially like another either, but each were being cared for in a specific way that would challenge them yet allow for comfort as well.  It was clear to us that they would be a better fit for Aggie.  She will be able to receive OT and PT twice a week and speech 4 times a week, all with-in the classroom, which is our preference to guard against any potential abuse or neglect, one of my biggest concerns.  This has been one of our main reasons for exploring this option for Aggie, as running her to therapy sessions throughout the week and maintaining my other responsibilities has been very difficult, and with Salem's expected arrival any day now......... We thought it would be wise to seek out other resources.

The Audiologist at the school asked me as we were leaving if I was excited.  I stated "I've never had to send a child to school, so it seems really odd that I would be sending my smallest most venerable one.  Though I see the resources available to her here, and think it will be good, I am still a little apprehensive about it."  And that was a very collected way to say I am anxious and struggling with fear.  The mom in me is grappling for control, my pride says I can do it, i just need to dig deeper. I can provide for all her needs.  But I am well aware that is just not true.  I feel much like I imagine a fighter pilot in training.  They practice procedures that intentionally cause the aircraft to "depart" so they have to learn how to get an aircraft spiraling toward the ground under control again and what the safe limits for the plane are.  This way when they are in battle, they know how to max perform their machine, push it to it's limits without having such an incident.  Pushing it beyond it's comfortable boundary makes the pilot acquainted with how close they can get to that boundary safely. The last two years of my life I've been pushed to "depart" and had to regain control in a downward spiral. In my humanness I have and am aware of my limitations, especially the area of motherhood.

One of the many ways the Lord has used Aggie in my life as a mother is to confront pride in my heart.  As a mom I often think that i know what is best for each of my children, and that I am the best and only  person that is to provide it. The Lord has used her to shake me and say "NO, I am the best, give them to me, I am their provider".  He has provided many opportunities in Aggies life for me to practice this in faith, as I hand her over for surgeries, medical appointments, and therapy sessions.  I have had may opportunities to lay her at His feet, and turn walk away and say, "Lord I know you are best, please pick her up and hold her close to your chest, she needs you". And time and time again, He has done just that.  I see this opportunity for school to be yet another time for me give her into His care.  It hurts my pride, my mommy heart aches, yet I do know and trust this is what is best for her right now.


Book Recomendation

"A praying life" by Paul Miller
A good friend pursued me, and recommended that we read this book together.  At the time, I was so dry spiritually that I had no idea how much it would affect me, and confront my sin and restore to me a right view of my savior that had been distorted gradually by my life circumstances.  But it has done just that, and has been a breath of fresh air.  At the time, I found myself floundering a bit; when she recommended it to me I thought, " I guess a book on prayer would be just as helpful as anything else at this point?", not really knowing what my need was, but realizing I certainly had one.  So in short God has used this book to revive places in my heart that had grown cynical and hard, and restored me to himself as my loving father.  Much like the prodigal son upon his return home.

Sunday, November 25, 2012

Coordinating Outfits from Aunt Stacy

It's so difficult to get a good shot of all three of them.....
 Not Looking
 Not liking the head band
 Fussing about the head band
 Drool on new dress
Two is a lot easier

Thanks for our new cloths Aunt Stacy! 

The day O turkey

We had the pleasure upon our return from our NC trip to host a family of friends at our home for Thanksgiving.  The kids had a blast playing! We also elected to celebrate Hosea's 5th b-day while we had extra children around and he loved it. In the middle of the day he looked at a friend and said "I'm having fun at my party, are you having fun".  Later in the evening when we were all sitting around the fire he sat in his chair and said, " I love my birthday, I'm the birthday boy."  Both made me chuckle to see him so elated.  
 Thanksgiving picnic
 The weather was beautiful
 Watching Charlie Browns Thanksgiving
 Optimus Prime smooch
 Birthday Boy
 Excited!
 Boys playing on the step ladder
Coloring by lantern

North Carolina

We had a lovely trip to NC to visit old friends. My only regret is that I forgot to bring my camera. We are so thankful to the Steel family for their hospitality to us. We had the pleasure to attending our old church's family retreat, it was a pleasure to see all their beautiful faces and hug their necks.  What a special time.  I especially enjoyed seeing Shiloh and Hosea befriend little ones that they use to toddle along side before our move.  They were thrilled to share a chair with them during the services and share coloring objects, sweetness.  Hosea was so comfy at one of the meetings with his little buddy along side that he dozed off. We played hard. The 15 hour van trip was split in to two days of travel and the children did very well, better on the way home than on the way out, which is unusual.

The excess travel stirred 2 comments in the children that we never thought we would hear come out of their mouths.

Shiloh said, as we were eating french toast for breakfast the last morning prior to our departure, "that the syrup was TOO SWEET".  For Shiloh to declare anything too sweet is amazing. Sugar is her achilles heal.

Hosea reported, as we were passing through Alabama, "that I need a break from movies".  Movies are his vice and he is constantly asking for them.

I suppose they both had an unintentional lesson in excess, and how unsatisfying it is.  Christ is our only true satisfaction.

Sunday, October 21, 2012

Baby Shower

A lovely friend hosted a baby shower for Salem and I.  Shiloh was also in attendance to "help" with gifts.  It was a lovely brunch, with my favorite meal breakfast foods.  I wish I had more pictures of friends, but i forgot to demand a group shot of everyone on the couch.  A big THANK YOU to everyone who came and helped!
 Yummy Food
 Drinks
 Waffel Bar; Shiloh really enjoyed this and selected big and little chocolate chips, powdered sugar with her syrup. 
 Since we were just two, and Mike had Hosea and Aggie coaching a soccer game, we were in the truck, and this was us all packed up with our goods, plus two pirate costumes I needed to return to the store on the right there, which were not for the baby shower.  I really enjoyed having my big girl with me, she was so sweet and elated to have some mommy and me time.
Here we are growing. 30 weeks. Shiloh yet again, my photographer.:)

Camping

A couple weeks ago we too a long awaited camping trip. We've postponed for two years now.  We try not to camp with babies or crawlers, but alas we've had one of those for 2.5 years, and aren't seeing a light at the end of the tunnel with Salem coming along, so we seized the moment.  We dove over to Blue Angle Park in Pensacola, a navy recreation area, set up the tent and had ourselves and adventure.  Shiloh and Hosea loved it, Aggie liked it as long as I let her eat sand and leaves and dirt.  Which i didn't , at least not on purpose. 
 Here is Aggie in her princess sand-gaurd, she has out witted the system and is still able to shovel large handfuls of sand into her mouth.  I do think it may have reduced the percentage of the incidence?
 Hosea looking for minnow, crabs, and anything else living he might be able to catch.
 The victims of Schloss family ninja skills, about 15 minnows and a crab. 
 Torture session of the little critters.  They were playing with them on this tent platform, and occasionally one would fall though the crack of the board, so Hosea would go "rescue" it. What a good Samaritan.  We did release the survivors eventually.  There were survivors, if you can imagine that?
 Campfire.
 S'mores, a must have.
 Fishing.
 Aggie, Salem and I.
The kids during a disk golf/walk though the woods. Mike plays golf and we all walk though the woods with him.

We only stayed one night, about a 24 hour camping trip, and honestly that was just about right. Long enough to say we did it and short enough to keep from getting to exhausted from managing a little one out of doors.