Aggie's News Feed

Monday we saw the Neurologist about Aggies EEG results. They were abnormal, but consistant with her MRI. Her brain sends "sharp waves", which can be the start of seizures. Thankfully her "sharp waves" were short in duration, and if it were a seizure it would sustain for a longer period. So basically it tells us what we already knew, Aggie is at risk for seizures. It is good to have a "baseline" EEG, so that future ones can be compared with it for progress or decline.

Yesterday Aggie had an Upper GI. Happy birthday to her!?!? She was not sedated for it, she had to drink contrast and they watched it go down her and took pictures. The test did not show any new findings, but did confirm her reflux problem.

Also, on a less medical note, she has a couple teeth poking through.

I was thinking on Monday in regards to my darling Aggie, how sweet it is that despite our changing health here on earth, and the trials we face, it does not change our status before our Lord, b/c of the finished work of Christ! How awesome of Him to be so unwavering for us in times of flex! How wonderful to think of the day we will all be renewed and enjoying Him for all of eternity.

Keep your eyes fixed dear friend, He will see you through!

Happy Birthday Aggie Rae!

My sweet little angle baby turns one today. We had a little celebration last week while our families were visiting. Of course all the children enjoyed the cake, and Hosea was eager to help out with the candle blowing. She is such a joy and delight to my heart and we are very thankful to have had the pleasure to enjoy her this past year. May the Lord use you for His glory my precious little one.

Ankle support........CHECK!

I'm not the only one.

The other day, about 2 weeks ago Hosea woke up from his nap and laid on the floor here with his blanket to try and finish waking up. It didn't work, he slept here for about an hour.

Beach

The families spent a lot of time at the beach and the pool while we had visitors, I missed out on some of this fun. This particular beach is the National Seashore at Perdido Key on the sound side, and I was able to participate. The kids enjoy catching hermit crabs there. This is right after we released our catch.

This is the first time Aggie enjoyed being in the water and did a little exploring with her hands.

Ballet Recital

Last Saturday Shiloh had ballet Recital. She did lovely, and looked the same.

Everyone came to see. Left-Right (Back)Mike, Grandpoo, Grandma, MeMa, Aggie, Me, Papa,

(Front) Shiloh, Brooklyn(my niece), Hosea.

The round-up

This week was difficult, both my parents and Mike's family were visiting. We were torn in many directions trying to enjoy, please and coordinate all. Additionally Aggie has had several apts. the past couple weeks, so I would be off doing that, and Mike still needed to work and is studying to take the GRE on Monday. It's very busy and I'm pretty exhausted, though now that everyone is gone, I'm not feeling quite so overwhelmed. We found out this week that Aggie will need to have a surgery or two? And some more testing. She for sure will be getting tubes in her ears. She may be having a surgery or two on her stomach. She spits up A LOT and hasn't gained weight in 3 months. Pray that she will take a bottle, she refuses and this is necessary for some of the testing they need to do next week! Her EEG of her brain last week was abnormal, we have an apt. Monday to discuss the results of that. She has an "upper GI" on Wednesday. We talk to the surgeon a week from Tue. about the tummy procedures. We are having a hard time finding a pediatrician that will "accept" her as a patient b/c of all her medical needs. This is very frustrating, b/c we can not proceed with her care until we find a new one, for insurance reasons. Please pray for us, we are weary as we are trying to trust in the Lord as we walk through this. The Lord is definitely using this to break me and any self-sufficiency i may still have running through my blood, to Him be the glory.