Sunday, April 14, 2013
Also amusing....
When Aggie is done eating she is in the habit of taking her bib off over her head and throwing it on the floor. This particular day I had left her in the chair a bit longer than she would have preferred. She tried to take her shirt over her head and succeeded, but she didn't have the arm thing figured out so well. Small things like this make me chuckle.
Sunday, April 7, 2013
Tour de Virus
It's been a while since I updated, with good reason. We've had a little "tour de virus", we are visiting many places, most of which seem to be on the continent of Stomach. But a couple have had a nice long visit of Cough Congestion and Sinus. The duration of our travels have been a luxurious 2 months and counting..... as yet another one stopped off at Tummy Troubles just this evening.
All this sickness hasn't given us much to photograph, but some funny sleeping pictures. We seem to be particularly amused at finding our children sleeping in interesting positions and places. Maybe you will chuckle too.
Note: We don't have a picture of Shiloh, she doesn't sleep much in the day. She does however like to sleep in a little later in the morning than the rest of us.
All this sickness hasn't given us much to photograph, but some funny sleeping pictures. We seem to be particularly amused at finding our children sleeping in interesting positions and places. Maybe you will chuckle too.
Note: We don't have a picture of Shiloh, she doesn't sleep much in the day. She does however like to sleep in a little later in the morning than the rest of us.
Salem in bumbo
She's just like the other Schloss babies, she likes her "silk"
Aggie under the pillow
Hosea on the living room floor
Aggie in crib, with braces on, feet up
Hosea on couch with grandpoo
Salem.... so sweet
Hosea with cookie
Monday, March 25, 2013
7 years today
Happy Birthday to my sweet, sassy,sister. Twirly, whirly girly on her 7th Birthday!
My first portal to "life as a vapor". Sigh
She's in it for the cake. The girl loves some sugar. She requested orange cupcakes. I decorated with buttercream frosting.
She was elated to have a special friend come celebrate with us.
She's been anticipating this day for 364 days. In October she informed me that her birthday was "getting close, it is only 6 months away". Glass half full. :) In December she told me "I'd been thinkin bout my birthday, I think we should make some plans. What theme do you think we should go with mom". We went with flowers.
Oh Lord I pray for this sweet little lady. Draw her to you, grow her in grace, lather her with abundant mercy. Give me grace to be a steward over, enjoy her and captivate her with your gospel that she might know the true and lasting joy of knowing our savior and the hope found in him.
Thursday, March 7, 2013
Hip Dysplasia
Aggie's pelvic/hip x-ray revealed that she has hip dysplasia. We will need to see an orthopedist for this.
Wednesday, March 6, 2013
Rehab Doctor
We saw a Rehab Dr. yesterday. The main purpose was to get idea's of things medically and otherwise that we can do to encourage Aggie to walk. It was her physical therapists' idea. He suggested serial casting and took an x-ray of her hips (she's at risk for dislocation). We need to research if there is anyone in our area that does serial casting so we don't have to drive to B-ham for it. Any who.... it is usually a little stressful seeing a new Dr. b/c we have to re-hash Aggies medical history, which is fairly extensive, give the list of her existing diagnosis, how we came to them, and the things that she is currently being tested for. But it was actually different yesterday. I was so thankful to have Mike with me, his strong arms wrangling that little girl, holding her for labs and x-ray. I was reminded very much of God's mercy toward Aggie, his kindness in answering our prayers about her. The re-hab Dr. was discussing some treatment options with us and said "usually people with her muscle disorder are on a ventilator or diagnosed with cerebral palsy", so he's not use to trying to help these people walk, they are generally stagnate in development or deteriorating. Praise God for Aggies' health and progress! I honestly spent most of the day so thankful she was alive. And this is just people with her muscle disorder, this does not include the other issues (brian damage/gene mutation......) she is really a little walking (well really crawling) miracle, and I am just so thankful for her little life right now as long as we get to enjoy it, even if that means 5 hour drives to a doctors office, a long wait, a short appointment and lab work, and a 5 hour drive back home with some added screaming for flare.
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