Part 4.5

A little mid-day update. Aggie is off the "vent and rack", we will only vent her g-tube as needed now, even at home. Tonight they will try feeding her through her g-tube to see how she tolerates it, if all goes well we will head home tomorrow sometime. We've held her several times b/c the only thing she's attached to now is her IV. She's still not eating super well, but I guess that's the beauty of the g-tube. I did give her a bed bath today, she screamed. Good for her lungs. She's been watching some baby Einstein and enjoying it and I taught her to give a high-five, which was pretty exciting since she only has a couple tricks. It just encourages me that even though her brain is not "normal" it still works. And along those lines, she had a well check the day before her surgery and her head had grown much more than anticipated! Such a blessing!