Genetics

We saw a new Dr. Thursday. A Genetics Dr. She was nice, she use to be a neurologist, but switched to Genetics. She is doubly helpful for us. She looked at Aggie's old MRI, which I had with me, always a hard thing for me to look at since much of her brain is missing or damaged. I'm no radiologist, but just looking at it you would naturally think, "that's not good". So I keep it stored away in my growing binder for times like Thursday, it usually takes me a few days to stop seeing IT and look at what is actually in front of me, a sweet, lovable cute little girl, a gift from the Lord.

The gist of what the genetics Dr. said was this, it doesn't look like she has a genetic disease based upon some past labs and the MRI and her "clinical appearance" aka. how she looks. She said, "What it looks like happened is her brain never fully developed and was damaged at some point in-utero. So her condition is "static", (not getting worse). The damage is done, now we just have to wait and see how she handles it." I was thankful for her frankness, no one has really just come out and said that, though it's been implied by logical deduction. This was bittersweet for me, b/c on one hand I though, "great it's not getting worse, and therapy can be helpful, and with God all things are possible." My other thought was, "what did I do during pregnancy to cause this?" This has been a big struggle for me this week. I know what God's word says in John 9:3 "It was not that this man sinned, or his parents, but that the works of God might be displayed in him." I believe God's word to be truth, but what I know is true doesn't always penetrate my heart at the same time it hits my brain. So I am praying in faith that God's works might be displayed in Aggie.

The plan for her is; she will need another MRI since it's been about a year since the first one, to look for changes. We will see the genetics lady again in 6 months, there may be more labs done at that time? I think for us the plan is, after we get this MRI done and see what it says we would like to start retreating from the Medical community as much as possible, and start living our lives apart from them, like most normal people do. We will still go for check-ups here and there, but would like a break from all the testing and such. We will still do therapy of course. Time will tell what the Lord has for Aggie Rae.