We were on a month long road trip June 18th to July 14th ish. We went to MO to see my family then to OH to see Mike's then up to Cleveland where we were able to speak with a Doctor who had recently done research on children with PDCD and how the ketogenic diet affect them. The diet has had nothing but positive effects on these children according to the study. The Dr. spent an hour and a half answering our questions, it was so helpful!! We also learned some good news.
1. Aggie looks very well for a female with the disease. That she has any form of mobility at all is remarkable. We are so thankful, and hopeful that she may someday walk.
2. If a female with the disease lives to be 4 years of age she will likely live into adulthood. Since Aggie is 3 and well, things are looking good for a longer life. Good news to us.
Mike is out of the Marine Corp, he has applied to the Navy Reserves and once he is in; he is hoping to apply for a full time job with in the reserves. He is currently unemployed and the paper work for this transition can take 1-6 months. He's getting a lot done around the house now that we are home.
We went to a parent practicum for classical conversations, our home-school group, for 3 days in July. I did the tutor training, as I'm going to be a "tutor" (aka teacher) in one of our children's classrooms when we all meet on Tuesdays.
We started Aggie on the Ketogenic Diet 4 days ago. She is officially in ketosis, which is the goal. It is suppose to supply a more useable form of energy for her. She won't eat much(which is not the goal), but is drinking her new formula well. Her temperament is relatively the same, which has large fluctuations on a normal day, so it's really hard to tell how she's feeling.
Salem is starting to roll all over the floor to get to what she wants. She is nearly 7 months old. It's nice to see her progressing. She's pretty cute and sweet. We love her!
Friday, July 19, 2013
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What a huge update! We will pray for you guys and especially that this diet would be effective for your dear love, Aggie. We also will pray for Mike's transition.
ReplyDeleteMuch love to you all!
The Reynolds
We were all so grateful for your visit & enjoyed it very much. The news from the Cleveland Dr. was an answere to prayers. We pray that God is with you in all you do.
ReplyDeleteLots of Love Mom & Dad