7 years today

 Happy Birthday to my sweet, sassy,sister.  Twirly, whirly girly on her 7th Birthday!

My first portal to "life as a vapor".  Sigh

She's in it for the cake. The girl loves some sugar.  She requested orange cupcakes. I decorated with buttercream frosting. 

She was elated to have a special friend come celebrate with us.

She's been anticipating this day for 364 days.  In October she informed me that her birthday was "getting close, it is only 6 months away".  Glass half full. :)  In December she told me "I'd been thinkin bout my birthday, I think we should make some plans. What theme do you think we should go with mom".  We went with flowers.

Oh Lord I pray for this sweet little lady. Draw her to you, grow her in grace, lather her with abundant mercy.  Give me grace to be a steward over, enjoy her and captivate her with your gospel that she might know the true and lasting joy of knowing our savior and the hope found in him.

Hip Dysplasia

Aggie's pelvic/hip x-ray revealed that she has hip dysplasia.  We will need to see an orthopedist for this.

Rehab Doctor

We saw a Rehab Dr. yesterday. The main purpose was to get idea's of things medically and otherwise that we can do to encourage Aggie to walk. It was her physical therapists' idea.  He suggested serial casting and took an x-ray of her hips (she's at risk for dislocation). We need to research if there is anyone in our area that does serial casting so we don't have to drive to B-ham for it. Any who.... it is usually a little stressful seeing a new Dr. b/c we have to re-hash Aggies medical history, which is fairly extensive, give the list of her existing diagnosis, how we came to them, and the things that she is currently being tested for. But it was actually different yesterday. I was so thankful to have Mike with me, his strong arms wrangling that little girl, holding her for labs and x-ray. I was reminded very much of God's mercy toward Aggie, his kindness in answering our prayers about her. The re-hab Dr. was discussing some treatment options with us and said "usually people with her muscle disorder are on a ventilator or diagnosed with cerebral palsy", so he's not use to trying to help these people walk, they are generally stagnate in development or deteriorating. Praise God for Aggies' health and progress! I honestly spent most of the day so thankful she was alive. And this is just people with her muscle disorder, this does not include the other issues (brian damage/gene mutation......) she is really a little walking (well really crawling) miracle, and I am just so thankful for her little life right now as long as we get to enjoy it, even if that means 5 hour drives to a doctors office, a long wait, a short appointment and lab work, and a 5 hour drive back home with some added screaming for flare.